Patient and caregiver stories

Learn how understanding CRC is critical and how it can affect one’s daily lifestyle.

‘In 2011, I was diagnosed with colorectal cancer (CRC) after a continuous problem with blood spurts from the anus. My Consultant estimated that my odds of survival into 2012 were 50 percent, an unsparing assessment to me as a biostatistician. An intensive course of targeted radiotherapy was followed by major surgery and the fitting of a colostomy bag. There were many subsequent complications but there were no conclusive signs of spread of the cancer. In 2013, the bag was removed and remission continued until the present day. My family history suggested a genetic link. Further research led to my joining the NI Cancer Research Consumer Forum which promotes new research into the diagnosis, prevention and treatment of all cancers. In particular, I was made aware of the groundbreaking work on personalised medical approaches to CRC being developed at Queen’s University, Belfast by Professors PATRICK JOHNSTON and MARK LAWLER.

A current major initiative is the MErCuRIC project which is pan-European and is seeking to develop dramatic new gene led treatments in order to cure the most pernicious types of CRC. The Chief Investigators want to incorporate the patient perspective. As someone in remission, I am very encouraged by such involvement and would ask others to join us for tumours know no borders.’

Ed Goodall